Living the high life on the water

Okay, first, I am not Bill Gates, where I never inhaled and neither does Sock Monkey (really, he doesn't).  I thought this would be a great opener for what I'm finding a VERY difficult blog to write.  I've been dwelling on how to put my experience that many of you saw and commented on my Instagram post, but I personally, do not remember too much, but my DH does.  

Since the '70s, as a Type 1 Diabetic, I took up the occasional puff puff when going out with friends.  It was mainly due to the fact that drinking alcohol was not one of my top things to relax with when out.  Being an introvert, it helped me loosen up a bit and at least remember the next day what I did.  Also, I tended to be the designated driver for my friends, since most of them couldn't afford the luxury of a car. 

Fast forward 40 years later, cannabis (weed) in Canada has been legal for both recreational and medicinal purposes since 2018.  Along with that, this year where I live, our small town that I believe still holds the record for the most Tim Horton's in Canada.  It looks like we are going the same route with shops opening up (and the one we went to called Shiny Bud... right across from, yuppers a Tim Horton ).  Think of these weed shops as being like a "candy store", which is how I felt when I stepped into one about a month ago to check out what it's all about.  Lots of goodies behind locked up display cases, etc.

My DH uses medicinal weed to help him deal with life.  Since he's started, I have seen an increase with my puff puff range during the week, unlike when he was working, it was just a weekend treat.  My main dislike is getting the munchies afterward, which we all know, will increase blood sugar control along with weight excess as a diabetic.  Of course, we all differ in how our bodies react, just like our insulin use.

Last weekend, my DH went to the shop to pick up some goodies, and the package you see above nestled in Sock Monkey's legs is a pre-rolled joint from Tweed.  It's a fat little bugger, and just a few puffs, sent me into a horrible spiral.

Here I was sitting on the side of our sailboat at our mooring ball, feet dangling over, relaxing after a day of work (I do a weekend shift) as we waited for dinner to cook on the BBQ.  I try to only smoke when I know that food will be involved since it works out better for the munchies along with insulin coverage. Basically from what I can remember over the period of an hour was my husband trying to hold onto me as I puked, sweated like I was in a sauna (I remember that bit), and slipping in/out of laa-laa-land so I wouldn't slip through the lifelines and fall into the water.  I swear I was hallucinating, and talking out loud (I thought I was shouting), but he said I wasn't quite making sense, even though it felt so real.  

What was alarming him was my Fitbit showing my heart racing away, and I think I remember telling him to check on it, along with my Dexcom to see if I was having a low blood sugar (see - we diabetics can't shut our brains down when we're in a bad place).  Blood sugars were perfect! 

What follows after that was him trying to get the attention of a few other moored boats for help, and when they did hear him, one of the members of our club who had experienced a stroke on his boat (where he voice-activated his mobile since he could not move, to get help).  I vaguely remember being rolled under the lifelines (and I'm no small person), into a dinghy. Being held, talked to keep me from passing out, it seemed like it took forever to get to shore (and the same thing with the ambulance ride).  The whole time I had my eyes closed for some reason. Weird, weird, weird.  Even composing this now, it feels like a dream.

So, this pukey coated old cat got loaded off onto the front dock of our club and whisked away by ambulance to the closest hospital about 20 minutes away.  Once I started to feel my body again, and be able to talk/think properly, it was basically determined that the higher concentration of TSH in this pre-rolled joint is probably the culprit.  The doctor pointed out as well, weed has come a long way since the early days, before it, and growers for the markets we have here in Canada are creating stronger and stronger high THC strains then what many of us smoked back in the day.  

So, all is good in my little world.  I've not smoked since then, and the smell of it makes me feel nauseated but that may soon pass, but for now, I think if I do partake in a puff puff session, using homegrown (we're allowed to grow 3 plants per household here in Canada) may be the way to go in future. My DH was so worried he was going to lose me, and in my brain during the whole time, I was trying to not freak out that I was having heart issues that are one of the many complications of diabetes.

Thank you to the members of our yacht club who did such a marvelous job of handling the situation, and because of what happened, we're planning on holding a course to teach people how to handle an offshore rescue like they did for me in the near future.  

Life is good on the water - one of my rescuers :)

Virtual Slipstream Event: Canada

I just finished up with a virtual weekend-long event by Connected in Motion (CIM) and I am very surprised to say that

WOW, IT WAS FORKING AMAZING!!!

The meet up on Friday ... AMAZING.  The discussions all weekend with great speakers ... AMAZING.  The new friends I've made from not just Canada, but UK / NZ / India / USA / Germany ... hoping  I didn't leave anyone else - AMAZING.  Over 300 were in virtual attendance, and you never would have known it, but we were all there.  What a wonderful way to together with other diabetics from the comfort of your home (some were in their backyards taking part in the workshops / etc. online).  Also, not all of us can drive /fly the distance to some of their events, let alone afford them if we're on a limited income (this virtual one was free, with the option to pay X amount, which is what I did to help support the wonderful group of people/volunteers who run this nonprofit organisation).

I mean, what more can you ask for with a virtual meet up like this?  Okay - maybe the smell of the wood fire, and the lap of the water on the shoreline as you sip on your morning/noon/evening cup of coffee (or what you may like to indulge in).  Hopefully, the Ontario Slipstream will be a reality on September 25-27th in Algonquin Park if lockdown and social distancing have been lifted.

This weekend's Slipstream was originally going to take place in British Columbia, but with the current pandemic with Covid-19, self-distancing, social distancing, lockdown in many parts of Canada since March, it was decided to hold it virtually through Zoom.

IT WAS FANTASTIC!!!!

I'm not a big lover of crowds.  I know this may come as a surprise to a few of you who have known me since the early days of the Diabetes Online Community (DOC) when I was hired by @Diabetes1.org back in 2009, but yes, at meetups, I can get crazy, with my cat ears and Sock Monkey.  Most of that craziness does not come from having a low blood sugar, but more my introvert side of myself, trying to overcome my scaredy-cat (pun intended) of being with a lot of people.  I've found too that it can be very overwhelming for me, along with the clickiness of groups.  That's never been my scene, and I tend to be attracted more to others who are like myself, feeling a bit overwhelmed.  Well, in this virtual atmosphere, you could have it all, with either being a fly on the wall just listening in or being upfront and personal.  It was the best of all worlds, and hope others felt this way too.

THE VIRTUAL STREAM CAFE  BAR

What a blast the cafe was that some of us would go to in between sessions.  It eventually became a bar in the evening, along with a big surprise of having Crystal Bowersox come by to play some of her ever so relaxing music.  Let's hope she is good on her promise to come to Canada, not to work as a musician, but to hang out with the friendly folks from Canada.  We said we could send her back home with good ol' Canadian insulin.  

One interesting workshop I was involved in, was on 'Growing our Community'.  I won't go into all of them, but for some of us who are older T1D's, we find a bit put off in attending due to how CIM advertises pictures of youth who seem to be in tip-top fitness shape and not quite into outside activity.  Reba Redmond was the moderator, and took many notes to help make the T1D Community, especially here in Canada more open to everyone .... aka Diversity!  Also, what I found out from others this weekend, is that no matter what age (you must be over 18 to attend CIM events) you can either be super active, a lazy cat (that's me, that's me).   That has been a big put off for me in attending CIM events, besides the travel/cost to attend that is required to get to them.  The main thing is ... it's whatever YOU want to get out of it and be with others who get you! So I may be able to set aside some monies to attend the Ontario Slipstream in September hosted in partnership with Beyond Type 1  if rules for social distancing are lifted.  Hopefully, I'll have a workable CGM at the time to do the 6-hour road trip by myself with less anxiety of having a low blood sugar below 5 mmol/l / 90 mg/dl.  

If I've got you thinking that this could be something up your alley, to at least try from the safety of your home, then check out this LINK, that shows the upcoming virtual slipstreams that may interest you. There's even one for our loved ones, aka Support Crew since they need help at times with understanding us.  Remember, if you don't live in North America, you are more than welcome to join, the more the merrier I say!   Also, virtual events like this, no flapping of wings is required/driving a long distance thus polluting the lovely blue marble we call Earth (Greta Thunberg would love us for this).

I know, a lot of information above, to take in, but I hope this helps you understand how awesome this event was for me.  Even an ol' 60 year-old like myself, who still thinks she's a youngsta after 54 years as a T1D!

Thank you so much to the sponsors that helped make this all possible. 

Greetings from Japan! 日本からのご挨拶 !

I was away visiting various countries in Asia during the month of December.  Lots to write about, lots of pictures to share so keep your yes posted as I find time in between my work to put my thoughts together (and go through all the pictures that both my husband I took together).

One thing that worried me abit in the beginning of my trip was the mainly rice based diet that Asians tend to eat.  Like many diabetics, I try to limit my carb intake to keep my blood sugars from spiking, but with any food, it's all about PORTION control.  All I can say, was I ever wrong about what they eat.  While rice does remain the base of their meals in most cases, they also eat alot of fresh vegetables and fruits.  All very healthy and tasty and the main thing as I've always written about, eating food that is not processed, cooked from scratch is the way to go with being healthy!

One thing I loved to have in the morning for my meal was congee while I was away.  It's basically a rice based porridge (or gruel to some of you).  It can be eaten plain (this is according to research I have done for this short blog), but my morning meal tended to be flavoured with chicken, along with fish or other meat served along it. Along with a scattering of roasted seaweed and some nuts, it kept my blood sugars more stable then my usual oatmeal porridge and my tummy happy until later in the afternoon.  Let's just say, I was pretty impressed with the results of my blood sugars as well.

So, on that note as I'm supposed to be "working", without further adieu, here is a link that I found in my latest Canadian Living that uses your slow cooker to cook up this tasty meal (in their article no reference is made to whether it's for breakfast or dinner ... but who cares!).

And for those of you who poo poo carbs, according to the nutritional breakdown, I can now see why perhaps I was having a few lows as I was guesstimating on the amount of carbs for the portions I was eating.  So, take a peak, I dare you to try something that is different then what you normally eat, and your body may thank you.

If you're wanting to know about the benefits of eating congee then I highly recommend this link to help educate yourselves.\

And with that,  どうもありがとう Dōmo arigatō - thank you very much for reading my dribbles here.  The pictures below are when Sock Monkey and I got to be dressed up in beautiful kimonas by some wonderful ladies in Shimizu, Japan (they say it takes them only 15 minutes to dress themselves up).  Of course, I chose a beautiful blue design for diabetes and yes, the Children with Diabetes bracelet from Friends for Life that I attend back in Niagara Falls, Ontario in early November was still on!).

And of course,

HAPPY NEW YEAR !!!  

明けましておめでとうございます

Mount Fuji was very clear that day!

Sock Monkey likes his hiding spot!

Mental abuse and guilty treats

Well, as I figure out what to do with a week off from work, which was supposed to be spent with my DH on our sailboat but then I chickened out with what happened during the week that made me realise that  on terra firma I can escape, but on water, in a 30' boat ... not so good.   So, I’ve got too much time on my hands (wanna listen to some music while you read the rest … then click on this LINK ) and I've decided to finally get back to what I love to do, put my thoughts down to save my sanity and amuse whoever reads this.

I’ve been abit out of social media, especially in the #DOC this year.  It’s mainly due to my Mum bidding adieu to the world in January, spending much needed  time with my Dad, and at the same time trying to do my best to repair a marriage that’s been going downhill for the past 10 years.  Believe it or not, one of the biggest factors that had caused problems in our 30 years together that I only found out about in 2017?

*** F_ING DIABETES ***

Sadly, he feels I spend too much time on it.   Good for me though, since starting insulin pump therapy back in 2007,  I was offered work at various websites, discovered  the Diabetes Online Community (#DOC), and life I thought was good.  Along with many other issues that can affect anyone's relationship,  I’m taking slow steps to venture out on my own.  It's a bit scary, now with compromised eyesight from the cataract surgery last year that I've written about, but it's time to open the door to new experiences, even at my age when retirement is just around the corner.  I know I'm stronger than I think but it'll just take time with what's been going on over the years that pushed me into doubting my sanity.

So, that’s my life in a nutshell … I’m still alive and kicking – despite a failed attempt at suicide back in April with over dosing insulin when I just couldn’t take it anymore (seeking help when usually it's you who is helping others made me feel silly, but they helped me understand that my situation demanded help).  I’ve had a few moments since then, but am hanging on as best as I can as I rediscover myself.

On to a good subject to end this blog that was difficult to sit down and write  … this will leave a sweet taste in your mouth.   I discovered last week, when I was in Ottawa at Costco, getting yes, my cheaper diabetes … these delightful little sweet treats to have with my café that you see below ! 

Yes, palm leaf pastries!  Even better they are made with butter, which is rare when you find commercially prepared ones where other fats are used.  The last time I had a true butter one was in Spain, and it just melted in my mouth.  Well, this ones do too, and they’re the perfect portion size to not overdue it if you’re watching your calories or carbohydrates.  One of these little pastries rings in a 60 calories, and 9 grams of carbs.  Perfect for my almost low carb meal plan (I try to aim for less than 120 grams a day … most of the time it’s less depending on what I eat).  With abit of cheese on the side to balance things out, it’s a great way to start off my day!

So, if you’re looking for them here in Canada (sorry my American friends) … check out Sweet Creations  to find out where you can purchase them besides Costco … and be prepared to fall in love! 

Stupid Girl

I’ve been abit behind in trying to blog lately … life has got abit crazy and if you follow me on some of the sites I post at … you’ll know why … with my DH aka Mr. Evel Knievel‘s wipe out on my D-anniversary motorcycle I’ve had for abit (it’s repairable … and luckily … he is repairing too with 3 broken ribs and stitches to the face).  It was scary the first 24 hours, watching the monitors, and him being out of it.  I basically broke down 48 hours afterwards due to  lack of sleep, food and just the fact I could have lost my husband, I was exhausted and needed a Calgon moment (hasn't happened yet). 

Taking someone to ER is scary, especially when it’s someone you love.  I’ve only been rushed to ER once in my life, when I was 13, and in DKA … at that point I was in and out of comatose state for a few days, while my body fought to regain control.  Yes, I was a really really #badass with my diabetes as a teenager.  I often hear of other diabetics being Frequent Flyers at the ER, but even in worst case scenarios (e.g. when I had a bad experience while sailing a few years ago) … I sort things out.  I hate hospitals with a passion, and even more so when it comes to surgical procedures that require me to put myself in someone else’s hands, and my diabetes control is temporarily out of kilter.

This is now where I finally explain Part Deux of what occurred with a recent colonoscopy that I had at a local hospital.  If you haven’t yet read it yet (how could you not have already – shame, shame) and wonder why I’ve entitled my blog this way … go to this link  to play catch up.

Do ya like my tush twinkle?

The day after having my colonoscopy done a few weeks I had my 3 month endo appointment.  Due to not being able to think properly, I had my DH drive and accompany me to the appointment (the hospital had told me 24 hours after the procedure not to operate any machinery or drive).   I needed his arm to support me for walking /  thinking and probably should have had him help with my infusion change the day before ( it seemed to take forever because I was so out of it and I’ve really got to show my DH how to perform this duty if I’m ever in this situation again).

As I’m trying my best to stay “ with it “ during my appointment, my DH is talking for me to help explain the situation.   I know at some point I tell the endo that I kept my insulin pump on, and that I’d told a fib about reducing the basal.

My endo basically slapped me in the face for my stupidity

Okay, she didn’t really “slap me”, since I only see her face on a screen since she lives 100 km away, but she was not happy with me.  Her reason for calling me stupid?   Well, I think after reading what she said, you may come to the same conclusion … I was plain stupid and taking a risk with my life not just with the colonoscopy but previous surgery that I’d had a long overdue repair on my knee for a meniscus tear (it couldn’t be saved).

She explained to me,  " what would have happened if by accident the surgeon had perforated my colon, and what is a simple 10 minute procedure could have lasted an hour or two "?  Meanwhile, unknown to the surgeon or RN’s, my pump is still running full throttle with basal not having been reduced as I told them.  What if the pump had started to do something wonky?  She admits that not many surgeons or RN’s understand pump technology … and even if they did … a mistake could happen, since I am the one responsible for how it is run. 

I of course went on about how the surgery I’d had almost a year ago where my blood sugars had zoomed up to 22 mmol/l after what was supposed to be a 1 hour surgery became 5 hours.  No insulin had been in the drip (they no longer do this) … you can read that blog at this link if you’re interested. 

I found out she has a Type 1 diabetic brother (still on MDI) and that if he was on a pump she would NOT have him wearing it during surgery.  She would rather see him go high then low; since it can be more easily corrected then if he went low  (I can hear a few of you making some noises at her statement).  And as my DH pointed out to my endo that after the hysterectomy surgery last year, he was there advising them how much insulin to give to me to bring me down since I was semi-conscious at the time and was trying to tell the RN's the same thing.  So it wasn’t like I was in exact danger of going into DKA, though I could have gone into hypoglycemic mode if he’d not told them at the time to not give 10 units of rapid insulin … I would have crashed with that amount since I’m still sensitive to insulin after ½ a century of being diabetic. 

I’d never really looked at it her way before.  Of the what if’s ….

I then told her how just a month previous to the colonoscopy that an anesthesiologist (Dr. McDreamy aka Dr. Cook in reality) had actually allowed me to wear my pump (after I showed him how to shut it off if my CGM started to go alarm I was going low).  It was so nice waking up after that surgery with perfect blood sugars, and feeling like I could leap over tall buildings  (well – not quite exactly like Superman) 

Ohh, ohh, another virtual slap (this is started to sting abit)

Once again, she explained all that could have gone wrong, and I actually began to see where she was coming from.  She even said that if I had one of the CDE’s beside me, watching things, it still is dangerous, that they may make an error despite all the knowledge that they may have, they are not YOU! 

It really made me face reality with what could/can occur during even the simplest procedure, while you are out flat on your back.  In future, I will rethink my control freakiness to have the perfect blood sugar during and after a surgical procedure (I’m hoping to not have another one for many years … well … at least 5 more years until my next colonoscopy).

So I've now come to the conclusion that MDI will be my future way to go … and know that even if I do spike high in my blood sugars, that I’ll be okay. 

I'm no longer a Stupid Girl 

It's the most wonderful time of the year ... taxation time in Canada

It's that time of the year again ... filing your income taxes here in Canada.

For those of us with health conditions, like myself with Type 1 diabetes, it can be a challenge to figure out what you can claim as " eligible medical expense " ( Lines 330 and 331 ).

Well, help is on the way thanks to Christina from Hamilton who reads my #dblogs from time to time - and had sent me a link from Canada Revenue Agency (CRA) to pass on to you.  It shows what Canadians can claim on our returns if you or your spouse/common-law partner paid for "eligible medical expenses" during the 12-month period ending in 2015 (or any that you did not claim in 2014). Whoo! Whoo!

The info is all pretty well straight forward, and you might even come across a medical expense that you didn't realise you could claim (I saw a few that I didn't know about).  Click on the following link  to find out more - http://www.cra-arc.gc.ca/medical/

And if you've not applied for  the Disability Tax Credit (I've written about it at Diabetes1.org in the past) - then it's time to get cracking!  When I applied for it, I was granted a total of 15 years.  You can find more information about how to proceed with filling out the form through the great website run by Barb Wagstaff at Diabetes Advocacy.

The Antidote - August 10th from 5-7 PM - Northampton, MA

Have nothing better to do on a warm summer night?  Do you feel like being an audience member or a participant?  If you're wondering where I'm going with this - check out the BLOG I posted  the other day at Diabetes1.org - Ms. Heffern is looking for T1D's to fill up a dinner table (5 course meal - I'll be there - what more can you ask for?).

I've attended this event before - back in July 2011 - it was a blast - helping to educate the audience members about what Type 1 Diabetes (T1D) is all about - no acting required - it's just sitting back - at a great meal (being served to you - now how often do you get this at home?) - and chatting away to others at the table.

Hope to see you there - it'll be well worth the 5 hour drive from Montreal to see you all.  I'm making a weekend trip of it due to the distance - mini-break for myself and my DH - who will also be at the head table - so you can grill him with questions as to "is she really as wild & crazy as she seems after being on the juice of life for almost 50 years???"