Showing posts with label diabetes. Show all posts
Showing posts with label diabetes. Show all posts

Sunday, July 5, 2020

Baked Rutabaga and Hot Italian Sausage Sauce



I have been posting quite a few of the usual #dblog that I would have done here at the Roller Coaster Ride of Diabetes being posted on my Instagram account.  I find a picture, with a few words (well, not always in my case <lol>), I get more satisfaction with knowing that it might touch someone’s life in a hopefully positive way, rather than going the route of a blog where many people are just so darn busy, they don’t have time to read all my words, funny links I pop in.
 
So, just remember, if you don’t see me posting here as often, you can always find me hanging out on Instagram while it’s still a fun place to post (sadly since Facebook bought it up, it’s changed slightly, but I still prefer to coziness, less drama of Instagram).

Now to the topic of this wonderful subject of pasta, that often makes those of us with diabetes/gluten intolerant and/or trying to lose weight, shudder and say “ No, No, No … it’s evil – it’s Creepy Pasta “.

I had ½ of medium-sized Rutabaga sitting in my crisper that I figured before it went funky, should be used.  I’m only trying to keep enough food to see me through the week, to not only to cut down on the grocery bill costs but also live the “waste not want not” way that I was raised on as a child living at home with parents that went through WWII. I’m telling you, this Pandemic is making a few of us revert back to days of the old (e.g. I no longer buy paper tissues aka snot rags). I've been making my own from thrift shop finds of cotton sheets that help to reduce landfill!
If you watched the above short video compilation above  … something new that I learned with my HuaweiP20 mobile … then you will get an idea of why I’m raving about this type of “pasta” over the usual spiraled zucchini (tends to be watery) / carrot (which is good) . Rutabaga packs in a lot of nutrition and is low in carbs depending of course on how much you eat!  I mean, it looks like pasta, is al dente, what more can you ask for?

Ugh “ you are saying to yourself (or out loud  – watch out someone might be watching you) …  Really isn’t that turnip that my Mum forced on me in some form or another as a kid? Nope don’t like it, won’t try it … “ yadda, yadda, yadda.

Come on – what is the harm in giving it a try?

Well, listen up matey … it’s NOT a turnip.  Yes, they are both root vegetables but found out when doing my in-depth research that’s done for all my scribbles you read that it’s probably a hybrid of a cabbage AND a turnip.  Sadly, the poor humble rutabaga is sadly confused and sold as yellow turnips or wax turnips.  It's part of the clan of root vegetables and a member of the Brassica family (doesn’t this sound like a story out of Outlander?) and rutabaga is probably a hybrid of a cabbage and a turnip.  The first known printed reference to the rutabaga came from the Swiss botanist Gaspard Bauhim in 1620, where he noted that it was growing wild in Sweden.  Of course, then speed on to WWI / WWI … many folks ate it, that's all they had at the time, so tend to not eat it because of the memories.

Turnip  /  Rutabaga - picture courtesy of Fine Cooking  
Where they both differ you may ask?  Rutabagas usually have yellow flesh and a purple-tinged yellow skin, and they’re bigger than turnips. Both vegetables have a slightly sweet but snappy flavor reminiscent of cabbage, but rutabagas are sweeter. 

So, here’s what I did. 
  • I peeled the wedge of rutabaga I had.  Stuck it on my Spiralizer and spiraled away (you won’t get dizzy trust me).  Note, you can get many different versions, go with what you can afford, have storage area for, etc.   
  • If baking in oven like I did. Set your oven at Gas Mark 4 / 350 °F / 175 °C
  • Ensure you have the right sized pot for your “pasta”, and get the water boiling (you could do this first, but after I spiraled what I thought wouldn’t amount to much, I’m glad I got the water boiling afterward, it would not have fit in the pot I'd intended to use.  During that time of waiting for water to come to a boil, just clean up the area to have less to deal with afterward, have a sip of your fav bevy, contemplate your navel, whatever.
  • Drop “pasta” into the water (it’s up to you if you want to put in a bit of salt, I didn’t), and cook for about 4-5 minutes.  Drain. Set Aside.
  • This next step is now up to you!  You are the creator of this wonderful dish. For myself, I had a leftover Hot Italian sausage sauce from a few days before.  I simply put a few scoops over the cooked “pasta” in a ceramic one–person dish smearing a bit of olive oil on the sides/bottom to prevent sticking. Stirred it around and topped it with some grated Parmesan.  Now, maybe that’s not your cuppa tea, go with whatever sauce you like with your regular pasta.  Maybe you like it simple, tossed in olive oil/butter with a bit of freshly grated pepper and some grated cheese.  It’s up to you!
  • Bake for about 30 minutes until bubbly and cheese melted. 

If you’re not oven baking like I did, I can’t wait to see your comments below on what version you created, be it Vegan/Vegetarian … whatever makes your tummy feel happy, and blood sugars stable.  Feel free to post the link from your social media account as well so we can all drool over it! 


Bon appetite!

NB:  Many thanks to Rutabaga Fest Blyth on Instagram for getting my mind interested in trying a vegetable that sometimes can get overlooked.  They are also on Facebook.   

Monday, May 4, 2020

Virtual Slipstream Event: Canada

I just finished up with a virtual weekend-long event by Connected in Motion (CIM) and I am very surprised to say that

WOW, IT WAS FORKING AMAZING!!!

The meet up on Friday ... AMAZING.  The discussions all weekend with great speakers ... AMAZING.  The new friends I've made from not just Canada, but UK / NZ / India / USA / Germany ... hoping  I didn't leave anyone else - AMAZING.  Over 300 were in virtual attendance, and you never would have known it, but we were all there.  What a wonderful way to together with other diabetics from the comfort of your home (some were in their backyards taking part in the workshops / etc. online).  Also, not all of us can drive /fly the distance to some of their events, let alone afford them if we're on a limited income (this virtual one was free, with the option to pay X amount, which is what I did to help support the wonderful group of people/volunteers who run this nonprofit organisation).

I mean, what more can you ask for with a virtual meet up like this?  Okay - maybe the smell of the wood fire, and the lap of the water on the shoreline as you sip on your morning/noon/evening cup of coffee (or what you may like to indulge in).  Hopefully, the Ontario Slipstream will be a reality on September 25-27th in Algonquin Park if lockdown and social distancing have been lifted.

This weekend's Slipstream was originally going to take place in British Columbia, but with the current pandemic with Covid-19, self-distancing, social distancing, lockdown in many parts of Canada since March, it was decided to hold it virtually through Zoom.

IT WAS FANTASTIC!!!!

I'm not a big lover of crowds.  I know this may come as a surprise to a few of you who have known me since the early days of the Diabetes Online Community (DOC) when I was hired by @Diabetes1.org back in 2009, but yes, at meetups, I can get crazy, with my cat ears and Sock Monkey.  Most of that craziness does not come from having a low blood sugar, but more my introvert side of myself, trying to overcome my scaredy-cat (pun intended) of being with a lot of people.  I've found too that it can be very overwhelming for me, along with the clickiness of groups.  That's never been my scene, and I tend to be attracted more to others who are like myself, feeling a bit overwhelmed.  Well, in this virtual atmosphere, you could have it all, with either being a fly on the wall just listening in or being upfront and personal.  It was the best of all worlds, and hope others felt this way too.

THE VIRTUAL STREAM CAFE  BAR

What a blast the cafe was that some of us would go to in between sessions.  It eventually became a bar in the evening, along with a big surprise of having Crystal Bowersox come by to play some of her ever so relaxing music.  Let's hope she is good on her promise to come to Canada, not to work as a musician, but to hang out with the friendly folks from Canada.  We said we could send her back home with good ol' Canadian insulin.  

One interesting workshop I was involved in, was on 'Growing our Community'.  I won't go into all of them, but for some of us who are older T1D's, we find a bit put off in attending due to how CIM advertises pictures of youth who seem to be in tip-top fitness shape and not quite into outside activity.  Reba Redmond was the moderator, and took many notes to help make the T1D Community, especially here in Canada more open to everyone .... aka Diversity!  Also, what I found out from others this weekend, is that no matter what age (you must be over 18 to attend CIM events) you can either be super active, a lazy cat (that's me, that's me).   That has been a big put off for me in attending CIM events, besides the travel/cost to attend that is required to get to them.  The main thing is ... it's whatever YOU want to get out of it and be with others who get you! So I may be able to set aside some monies to attend the Ontario Slipstream in September hosted in partnership with Beyond Type 1  if rules for social distancing are lifted.  Hopefully, I'll have a workable CGM at the time to do the 6-hour road trip by myself with less anxiety of having a low blood sugar below 5 mmol/l / 90 mg/dl.  

If I've got you thinking that this could be something up your alley, to at least try from the safety of your home, then check out this LINK, that shows the upcoming virtual slipstreams that may interest you. There's even one for our loved ones, aka Support Crew since they need help at times with understanding us.  Remember, if you don't live in North America, you are more than welcome to join, the more the merrier I say!   Also, virtual events like this, no flapping of wings is required/driving a long distance thus polluting the lovely blue marble we call Earth (Greta Thunberg would love us for this).

I know, a lot of information above, to take in, but I hope this helps you understand how awesome this event was for me.  Even an ol' 60 year-old like myself, who still thinks she's a youngsta after 54 years as a T1D!


Thank you so much to the sponsors that helped make this all possible. 


Monday, January 13, 2020

Brain function in Type 1 Diabetics

Wow, it's hard to believe that the last time I composed a blog was in the summer.  Life has been a roller coaster ride and surprisingly, it has very little to do with diabetes hiccups, but more coping with everyday life and trying to keep plodding away at work to pay the bills.  Aren't we all in the same boat, unless you've lucked in on a win fall!
Also, I've taken a bit of a step back from social media.  Facebook to be exact.  It's too time-consuming and it's not real life.  Real-life is what we do outside of these machines that go bing.  Though I have to admit, Instagram is my fav social media hang out, as it has some great Type 1 diabetics who post not just about diabetes, but their lives outside of it.  It's a much happier place, and I guess I've always liked pictures. Of course, I time myself to how much I spend there!

One of my fav Instagram posters is Melissa Allison from Australia.  One of her children has Type 1 diabetes, and we just happened to click with our posts.  Her pictures are breathtaking showing their life in Australia as well.  You can follow her at ShinyBrightSkies .

Last week, she sent me an interesting study from Standford University that was released back in December 2019 on brain function being irregular in children with Type 1 diabetes wondering what I thought of it.

'  The study, published online Dec. 9 in PLOS Medicine, is the first to evaluate what happens in the brains of children with diabetes during a cognitive task. On functional magnetic resonance imaging scans, when their brains were at work, children with diabetes displayed a set of abnormal brain-activity patterns that have been seen in many other disorders, including a cognitive decline in aging, concussion, attention-deficit hyperactivity disorder, and multiple sclerosis. '

It's nothing really new to myself since insulin plays a big role in brain functionality and I've always known that another outcome of long term diabetes is possibility of dementia.   It's the reason why I try to educate folks with diabetes to keep their blood sugars from going too low or too high.  In my mind, our blood sugar when out of whack is like a car battery leaking acid onto metal.  Need I say more?

This wasn't new to Melissa as well, but she felt that this article was good ammunition when dealing with schools if a child was having problems in the classroom.  Showing that blood sugars can play a role in how our brain works.  I'll be passing this article onto a few of my school teacher mates, especially those who already have diabetics in their classroom, to give them a better understanding.

Another segment of the papers had me reread it a few times, and you'll understand why when you read it below :

'   The study found that, although the children with diabetes performed the task as accurately as those in the control group, their brains were behaving differently. In children with diabetes, the default-mode network, which is the brain’s “idle” system, was not shutting off during the task. To compensate for the abnormal activation of the default-mode network, the brain’s executive control networks, responsible for aspects of self-regulation and concentration, were working harder than normal in the children with diabetes.  '


The "idle" system not shutting off during a task really resonates with me, and I wonder is it because we are always having to think about whether or not we are low or high in the blood sugar area subconsciously in the background?  Other diabetics I've spoken to, have said the same thing, that our brains don't really take a rest, we are always thinking.  About the only time we get to go idle is sleeping.  That's if we aren't dealing with low or high blood sugar, whether or not we have the use of a CGM (continuous glucose monitor).  Our brains just do NOT shut down. 

As someone who been diagnosed well over 50 years, I wonder if that one of the reasons I had problems at school, it was a bloody challenge at times.  Of course my fav subject, writing/arts were my favs, but those don't gain your foot in the door all the time for employment!  I managed to grind through, but I wonder if I'd had the devices like we have today, that keep us more in check if perhaps I'd gone further on in education.



Monday, August 12, 2019

Getting out of my comfort zone


My only meetups with other diabetics tend to be outside of Canada over the past 11 years since I started dabbling in the diabetes education/advocacy area, at conferences where you're inside and learning about new advances, meeting new friends, etc.  Most don't tend to involve much activity, so this recent long weekend trip near Sudbury, Ontario back in the beginning of July was a nice treat.

I attended an outdoor adventure with other Type 1 diabetics and their "5.5er's" (either our partner in crime or friend/parent) organised by Connected in Motion (CIM).  It's been over 40 plus years since I went "into the wilderness" as a child in the 1970's at Camp Banting near Ottawa (it was almost closed down last year by Diabetes Canada, but luckily funding from private organizations, folks like myself are keeping it running for hopefully many years as Canada's longest-running camp for Type 1 diabetics since 1953).  All I know is that the 2 weeks away back in those days (giving my parents a much-needed break) was awesome, even better was being with others like myself.   Back then, it wasn't a cheap experience for my Dad to fork out for as the only breadwinner in our house.   To me it was heaven having blisters on my hands from paddling hard in the Ottawa River,  getting dirt under my nails as a child, listening to haunted stories around the campfire, and scaring some of my bunkmates with wiggling legs of a daddy long-legged spider. 


Canoes all lined up for their next adventure

Back to the present, the French River Provincial Park was our first initial meet up for the 2019 5.5er Canoe Trip event.  Majority of people who attend these events tend to live closer to the areas that events are held, so it was a good 8 hour drive through some beautiful parts of Canada as we traversed along the Ottawa River on Hwy 17.  If you're a true Canadian, road tripping is part of what we're known for due to the large size of our country and the cost of air travel here.


Paddling along and well protected from the sun

We'd not calculated properly the time it would take to get there, so arriving in the dark was fun on the Friday night, even more fun later on, once we set up our 2-man tent that's provided (really meant for 1 - but if you don't mind sleeping opposite each other at night ** my feet don't smell **, you are comfy as a little bug in a rug).  I'd not been in a provincial campground, especially one that many Toronto folks can easily drive to, was a wee bit daunting for someone like myself that's not too big on those types of campgrounds.  The main thing, it was only one night - otherwise - Sock Monkey. Yes, he came along despite some of the other attendees thinking it a wee bit odd that an old fart T1D would have a stuffed toy ... ahhhh ... long time insulin junkie ... makes the brain refuse to grow up perhaps???  Well at least in my case it does.  If I keep on attending more CIM events, hopefully, they'll get used to him being part of the team like my American #foundmytribe have, along with my cat ears (these weren't revealed at this event).


Sock Monkey enjoying his cuppa joe in the morning !

All, I can say is, the 3 days we were all together, was absolutely awesome.  Exploring via your own canoe, and feeling like you're in a Group of Seven picture, breathtaking as you paddled along.  Helping each other out, e.g. if your insulin gets fried in your canoe in the sun/heat, everyone has extra vials of insulin to help you (they did get it all sorted out).  For those of us (mainly myself and my hubby Mike) who hadn't canoed in a while, the whole gang was very forgiving as we slowly meandered to them to give them a love tap as we figured out how to steer (as Mike said, very different from sailing LOL).  If we could have been captured flipping our canoe over close to shore, you'd be seeing it here in this blog ... in    s   l   o   w  motion, which is what someone had said it looked like when it happened. 

The fresh air, the water (no one contracted Beaver Fever), the crackling of the fire as our food was cooked over it (no fire ban that weekend - yee haa), paddle going through the water.  If you're a lover of good coffee, then you will not be disappointed with the filtered water we used to prepare our morning wake up call of the wilds bevy!   What a way to start the day off, #insulinandcoffee!  And of course, sitting on the throne (aka thunderbox) .... ahhhh ... nothing like taking a crap in the woods!

I was surprised that at my age, I  could keep up with some of the younger folks within the crowd.  I was a bit worried and having an anxiety attack as I arrived (it's weird as I'm aging, I find large groups are difficult to handle when I've been to diabetic conventions), along with not knowing anyone.  Luckily, the 14 of us all easily melded together as a team.  Even better, there wasn't much of an age difference that would make me stand out like an old fart in a canoe as well   



So, if you're ever thinking it's too late to try an adventure that may be out of your comfort zone.  I can thoroughly recommend going on this yearly weekend event that CIM holds as well as their other events in North America (not just in Canada, but also in the United States).  I know that despite this only being my second time portaging, I'm wanting to do a longer trip eventually.   

Evidence that someone had a low blood sugar - can you spot the gumdrop?

And before I go, all I want to say is " Eat your heart out Gordon Ramsey, cooking over a campfire is the best way to eat ". One of the meals that we had over the weekend, was so delicious, that many of us asked for the recipe.  Thank you, Amy Burrows, for showing us you can eat well when canoe tripping and don't have refrigeration!  


Portage Heaven Buddha Bowl 

2 tablespoons vegetable oil

2 cups cubed extra-firm tofu
8 cups hot cooked brown rice
2 cups grated carrots
2 cups grated beets
2 cups packed baby spinach leaves
2 cups slivered almonds toasted

-- Glory Bowl Dressing --


1/2 cup nutritional yeast flakes
1/3 cup Tamari
1/3 cup soy sauce
1/3 cup apple cider vinegar
1/3 cup water
2 tablespoons tahini
2 cloves garlic crushed
1 1/2 cup vegetable oil


Really, no directions needed.  It's that easy!!!  And we used rice that we had leftover from the previous nights' dinner.  This feeds a crowd of 15 hungry paddlers easily!  Bon appetite!




Time to head back to city life ... waaahhhhh



Psst, if you're wanting to attend one of the Connected in Motion 2019 SlipStream Events -this check out this link for more info.  Meeting up with fellow T1D's over a weekend event and chill around an open campfire.   You still have time to register and I may see you there (you could be bunk mates with me and Sock Monkey). 

Wednesday, January 2, 2019

Greetings from Japan! 日本からのご挨拶 !

I was away visiting various countries in Asia during the month of December.  Lots to write about, lots of pictures to share so keep your yes posted as I find time in between my work to put my thoughts together (and go through all the pictures that both my husband I took together).

One thing that worried me abit in the beginning of my trip was the mainly rice based diet that Asians tend to eat.  Like many diabetics, I try to limit my carb intake to keep my blood sugars from spiking, but with any food, it's all about PORTION control.  All I can say, was I ever wrong about what they eat.  While rice does remain the base of their meals in most cases, they also eat alot of fresh vegetables and fruits.  All very healthy and tasty and the main thing as I've always written about, eating food that is not processed, cooked from scratch is the way to go with being healthy!

One thing I loved to have in the morning for my meal was congee while I was away.  It's basically a rice based porridge (or gruel to some of you).  It can be eaten plain (this is according to research I have done for this short blog), but my morning meal tended to be flavoured with chicken, along with fish or other meat served along it. Along with a scattering of roasted seaweed and some nuts, it kept my blood sugars more stable then my usual oatmeal porridge and my tummy happy until later in the afternoon.  Let's just say, I was pretty impressed with the results of my blood sugars as well.

So, on that note as I'm supposed to be "working", without further adieu, here is a link that I found in my latest Canadian Living that uses your slow cooker to cook up this tasty meal (in their article no reference is made to whether it's for breakfast or dinner ... but who cares!).



And for those of you who poo poo carbs, according to the nutritional breakdown, I can now see why perhaps I was having a few lows as I was guesstimating on the amount of carbs for the portions I was eating.  So, take a peak, I dare you to try something that is different then what you normally eat, and your body may thank you.

If you're wanting to know about the benefits of eating congee then I highly recommend this link to help educate yourselves.\

And with that,  どうもありがとう Dōmo arigatō thank you very much for reading my dribbles here.  The pictures below are when Sock Monkey and I got to be dressed up in beautiful kimonas by some wonderful ladies in Shimizu, Japan (they say it takes them only 15 minutes to dress themselves up).  Of course, I chose a beautiful blue design for diabetes and yes, the Children with Diabetes bracelet from Friends for Life that I attend back in Niagara Falls, Ontario in early November was still on!).

And of course,

HAPPY NEW YEAR !!!  

明けましておめでとうございます

Mount Fuji was very clear that day!


Sock Monkey likes his hiding spot!






Sunday, August 19, 2018

Mental abuse and guilty treats


Well, as I figure out what to do with a week off from work, which was supposed to be spent with my DH on our sailboat but then I chickened out with what happened during the week that made me realise that  on terra firma I can escape, but on water, in a 30' boat ... not so good.   So, I’ve got too much time on my hands (wanna listen to some music while you read the rest … then click on this LINK ) and I've decided to finally get back to what I love to do, put my thoughts down to save my sanity and amuse whoever reads this.


I’ve been abit out of social media, especially in the #DOC this year.  It’s mainly due to my Mum bidding adieu to the world in January, spending much needed  time with my Dad, and at the same time trying to do my best to repair a marriage that’s been going downhill for the past 10 years.  Believe it or not, one of the biggest factors that had caused problems in our 30 years together that I only found out about in 2017?

*** F_ING DIABETES ***

Sadly, he feels I spend too much time on it.   Good for me though, since starting insulin pump therapy back in 2007,  I was offered work at various websites, discovered  the Diabetes Online Community (#DOC), and life I thought was good.  Along with many other issues that can affect anyone's relationship,  I’m taking slow steps to venture out on my own.  It's a bit scary, now with compromised eyesight from the cataract surgery last year that I've written about, but it's time to open the door to new experiences, even at my age when retirement is just around the corner.  I know I'm stronger than I think but it'll just take time with what's been going on over the years that pushed me into doubting my sanity.


So, that’s my life in a nutshell … I’m still alive and kicking – despite a failed attempt at suicide back in April with over dosing insulin when I just couldn’t take it anymore (seeking help when usually it's you who is helping others made me feel silly, but they helped me understand that my situation demanded help).  I’ve had a few moments since then, but am hanging on as best as I can as I rediscover myself.


On to a good subject to end this blog that was difficult to sit down and write  … this will leave a sweet taste in your mouth.   I discovered last week, when I was in Ottawa at Costco, getting yes, my cheaper diabetes … these delightful little sweet treats to have with my café that you see below ! 


Yes, palm leaf pastries!  Even better they are made with butter, which is rare when you find commercially prepared ones where other fats are used.  The last time I had a true butter one was in Spain, and it just melted in my mouth.  Well, this ones do too, and they’re the perfect portion size to not overdue it if you’re watching your calories or carbohydrates.  One of these little pastries rings in a 60 calories, and 9 grams of carbs.  Perfect for my almost low carb meal plan (I try to aim for less than 120 grams a day … most of the time it’s less depending on what I eat).  With abit of cheese on the side to balance things out, it’s a great way to start off my day!

So, if you’re looking for them here in Canada (sorry my American friends) … check out Sweet Creations  to find out where you can purchase them besides Costco … and be prepared to fall in love! 


Friday, June 2, 2017

Big Blue and Bowie - in bed together forever

UPDATED August 27, 2017 (see Note 1)

So, if you haven't read my blog post about Big Blue, my Animas Vibe's first week of use, then hop on over to this LINK.  The rest of what I write about below will make more sense.  I'll try to keep this short and sweet since hey, it's TGIF!   Let the weekend begin!!!



After posting the blog on my disappointment with the accuracy of Big Blue who has CGM capability (this sounds like the Six Million Dollar man ... we have the technology ) along with a few other quirks.  Here's my update.

I cannot return the Vibe.  Plain and simple according to the Animas representative that came by after my blog went around the globe.   Due to the ADP program in Ontario, you cannot just pick and choose a pump, then decide it's not to your taste.   A wee bit disappointed with that, but the rep made things abit easier with the following suggestions that I will have to live with for the next 5+ years, or until Big Blue bites the dust.

The reps suggestion?  While I still have a functioning Ping aka Ziggy.  When I want to wear something slinky that I can't access my insulin pump in order to bolus, etc.  Simply use Ziggy along side Stardust my One Touch blood meter with Bowie my Dexcom receiver.  Simply remove insulin cartridge from Big Blue - plop it into Ziggy.  Best of both worlds as the rep put it!

We also came to the decision that due to incorrect sensor placement on arm, that this was the reason for the Vibe CGM and Dexcom receiver being off that I wrote in my previous blog.  I can agree on that after removing the sensor due to the fact that it was not sticking well on my arm and sensor wire looking not too straight. We think it was barely in my skin.  Plus, I had placed the sensor incorrectly, since the muscles in my arm when it's placed HORIZONTALLY, tends to pull the wire back/forth, cause sensor tape to not stick as well.

Silly me, deciding to try the horizontal placement for a change of pace, thinking well, if it works great on my "flat" stomach, why not the arm too?  NOPE!  Muscle, muscle, muscle ... pull ... pull ... pull. The rep of course reminded me that we are not supposed to place our sensor anywhere else but our stomach, and basically just pretends he doesn't know that many of us do things with our medical devices that are not approved of in the manual.

So, after placing a new sensor in ... correctly ... this is where I found both the Vibe and the Dexcom receiver were spot on with each other.  Cancel that FAIL quote from the previous blog!


So, I am now only using my Vibe for seeing my trend (when you press the Contrast button, you can see the last CGM screen viewed).  I tend to to like to see the current blood sugar, that shows which way the arrows are going, along with the IOB (Insulin-On-Board).  Bowie, takes care of all my other needs for info on my blood sugar trend, etc.

NOTE 1:  August 27, 2017 - since writing this blog - I have decided to no longer use Bowie - since often I lose him  ... urrrhhh.  I've gotten used to relying on the vibrations/alarm set up on the Vibe ... though I may eventually go back to Bowie ... since again ... the alarms on the receiver are easier to determine if it's a LOW/HIGH .

Handy Trend Arrow Chart from Animas representative


The trend, and other information that is shown on Bowie aka the Dexcom receiver.  It is far is better for viewing than the Vibe pump screen. Also, when it comes to alarms, as stated in previous blog, hands down for Bowie who sings like a Hero in my eyes to save me from either going too low or too high.

Remember use me as an example .... don't rush in too fast for something until you do your research, which I should have done!  You might regret it!  DOH!!!


Sunday, May 21, 2017

First week with Animas Vibe aka Big Blue

UPDATED August 27, 2017 (see Note 1)

I finally took advantage of the ADP program here in Ontario and now have been in possession of Big Blue .. aka an Animas VIBE and CGM System.  The program pays for all age groups of Type 1 diabetics in the province of Ontario for the pump and $2,500 a year towards pump supplies.  So, no more paying outright for my pump ... and making Visa travel reward miles on the purchase - boo! hoo! The pump warranty is for 5 years rather than the 4, when I would purchase my pump privately, so win win.  So until the pump breaks down, it's my buddy until it's death date of ... get this ... 2040!!!  Unlike my previous pump, a ONE TOUCH Ping aka Ziggy Stardust ... his death date IS December 31, 2022.  I'm still keeping Ziggy, as a back up for holiday until then.  He served me well!  I just wanted to have the pump and CGM integration that the VIBE offers.

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A few people have written to me privately, asking me what I think of the Vibe, and after a week of using it, here's my honest thoughts.  I'll keep this as easy to understand as possible.  If it doesn't make sense, comment below and I'll do my best to answer you.

Comparison of Ziggy and Big Blue

PROS:

  • The pump is a little bit bigger then the ONE TOUCH PING, so the screen is abit larger.  Probably due to housing more hardware inside due to the CGM being incorporated into it.  See below in CONS.    NOTE 1: After meet up with Animas rep - there is NO size difference - both the way (even they were fooled by the way the picture turned out).
  • When it comes to entering the TOTAL that is shown on your screen when doing an EzCarb or EzBg.  You no longer have to scroll the numbers from 0.  If your TOTAL is showing 3.0 units ... as soon as you touch the OK and the UP BUTTON ... you are at 3.0 instantly.  It is still taking me time to remember this ... since you can rapidly go up to 6.0 in a nanosecond.
  • You have your CGM display available to you.  See below in CONS.
  • You can use any blood meter you want to - which in my case when I was using the 2020 - was FreeStyle Lite which uses the smallest droplet of blood and according to research has better accuracy of many other meters on the market (plus the strips are less expensive - a big factor for me come September when I no longer have work coverage).

CONS or as I call it FAIL:

  • I'm finding the screen keys abit less soft, so you do have to press abit harder.  For someone with arthritis (which I have), it could be problematic in time.  Also, I wonder if the plastic on the buttons is more hardier, since the 2020 and PING seemed to wear down faster.  I never had these problems, but have heard from others who did.  Again, warranty for most people should cover this problem if it occurs.
  • For the CGM ALARM settings -  they suck compare to the DEXCOM Receiver!  You only have options similar to what you use on your insulin pump portion for ALARM settings.  It's annoying as all hell when you're driving, and it's going off on some hissy fit.  Hard to distinguish one from the other.   FAIL!!!
  • Accuracy between the DEXCOM receiver and the VIBE are not as accurate as I thought.  I had started them both off within 5 seconds of each other when booting them off so that Calibration times would coordinate.  The DEXCOM receiver wins hands down.  FAIL!
  • You cannot set the REMINDER time on the PING for HYPO any lower than 30 minutes.  The receiver you can enter in as low as 15.  Not good in my opinion.  This also surprised my CDE's when they witnessed me experiencing a 2.8 while in their office (and I amazed them further by acting the same way ... cool and under control ... actually I was sweating like a pig ... and sadly ... the alarms on the VIBE did not forewarn me of my rapid decline in blood sugar like my DEXCOM receiver does.  FAIL!
  • Too many screens to go though to get to the CGM area.  DEXCOM receiver wins hands down.
  • No ability on the VIBE to enter in Activity or additional Insulin perhaps given by IM for high blood sugar (a no no still in my endo and CDE's eyes ... I swear I have whip marks on my behind from them!!!).  DEXCOM receiver - wins hands down.
  • I am now limited to wearing separates again when it comes to being a Fashionista, no remote for pump entry for blood sugars, and also if you rely on pump soley for CGM reading ... you get it ... I dare you to look at this naughty picture!!


My lust for the ANIMAS Vibe was bigger than my brain!     

CONCLUSION:

If you are with the ONE TOUCH PING ... stick with it.  The only thing that got me into going onto the VIBE was the representative wiggling a carrot in my face at the yearly Insulin Pump meeting in March that all ADP participants have to attend ...  that for only $800 I could get a box of sensors, transmitter, and receiver IF I purchased the VIBE soon (Animas Canada is no longer going to be selling Dexcom supplies as of this summer, so they're getting rid of all their G4 stock).  As many of you know,  I live on handouts of expired sensors, receivers (and I even have a transmitter that may still have life in it from someone who went onto a G5 system) due to paying out of pocket.  Here I was with lust in my eyes for this great deal (as bad as I am when I see a deal in a thrift shop, but this is a life saving article that isn't $2!!).

A week later .... this is how I feel ... blah ... and wishing maybe I'd just stuck with good old Ziggy and his  side kick Stardust (the ONE TOUCH blood meter)  who sucks up alot of blood, but means I don't have to pull my pump out all the time to bolus, look at CGM reading.  Really fun when you're wearing a dress I'm telling you, make sure you are wearing clean, unholey underwear!!) - and if you didn't click on the "naughty" picture in the CONS area ... scroll back up - I double dare you!!

Sigh - I should really be more serious when I write shouldn't I?  Chin up and all that stuff.

Anyhow, I've turned off the CGM on my Big Blue, gone back to the DEXCOM receiver, that I've had for almost 4 years that is still working strong.  I had hoped with the VIBE that I would not have to use it, but I guess I was spoiled by using the receiver, and it works, it notifies me when it's unhappy with me.  Perhaps if I was a newbie to the CGM system on the pump, and had nothing to compare it to, then I'd not be writing this.  I wouldn't know any better.

In hindsight, I should have just waited it out until the end of my ONE TOUCH PING life when perhaps updates could have been made on the programming of the VIBE.  I'm going to contact both my CDE and Animas (they'll be getting a link to this blog) next week to see what we can do.  I'll keep you posted in upcoming blogs on my progress and I hope it's good news.

By Manny Hernandez - 2008 - Hope: Diabetes Supplies Art 






Friday, July 29, 2016

Stupid Girl

I’ve been abit behind in trying to blog lately … life has got abit crazy and if you follow me on some of the sites I post at … you’ll know why … with my DH aka Mr. Evel Knievel‘s wipe out on my D-anniversary motorcycle I’ve had for abit (it’s repairable … and luckily … he is repairing too with 3 broken ribs and stitches to the face).  It was scary the first 24 hours, watching the monitors, and him being out of it.  I basically broke down 48 hours afterwards due to  lack of sleep, food and just the fact I could have lost my husband, I was exhausted and needed a Calgon moment (hasn't happened yet). 

Taking someone to ER is scary, especially when it’s someone you love.  I’ve only been rushed to ER once in my life, when I was 13, and in DKA … at that point I was in and out of comatose state for a few days, while my body fought to regain control.  Yes, I was a really really #badass with my diabetes as a teenager.  I often hear of other diabetics being Frequent Flyers at the ER, but even in worst case scenarios (e.g. when I had a bad experience while sailing a few years ago) … I sort things out.  I hate hospitals with a passion, and even more so when it comes to surgical procedures that require me to put myself in someone else’s hands, and my diabetes control is temporarily out of kilter.

This is now where I finally explain Part Deux of what occurred with a recent colonoscopy that I had at a local hospital.  If you haven’t yet read it yet (how could you not have already – shame, shame) and wonder why I’ve entitled my blog this way … go to this link  to play catch up.

Do ya like my tush twinkle?
The day after having my colonoscopy done a few weeks I had my 3 month endo appointment.  Due to not being able to think properly, I had my DH drive and accompany me to the appointment (the hospital had told me 24 hours after the procedure not to operate any machinery or drive).   I needed his arm to support me for walking /  thinking and probably should have had him help with my infusion change the day before ( it seemed to take forever because I was so out of it and I’ve really got to show my DH how to perform this duty if I’m ever in this situation again).

As I’m trying my best to stay “ with it “ during my appointment, my DH is talking for me to help explain the situation.   I know at some point I tell the endo that I kept my insulin pump on, and that I’d told a fib about reducing the basal.



My endo basically slapped me in the face for my stupidity

Okay, she didn’t really “slap me”, since I only see her face on a screen since she lives 100 km away, but she was not happy with me.  Her reason for calling me stupid?   Well, I think after reading what she said, you may come to the same conclusion … I was plain stupid and taking a risk with my life not just with the colonoscopy but previous surgery that I’d had a long overdue repair on my knee for a meniscus tear (it couldn’t be saved).

She explained to me,  " what would have happened if by accident the surgeon had perforated my colon, and what is a simple 10 minute procedure could have lasted an hour or two "?  Meanwhile, unknown to the surgeon or RN’s, my pump is still running full throttle with basal not having been reduced as I told them.  What if the pump had started to do something wonky?  She admits that not many surgeons or RN’s understand pump technology … and even if they did … a mistake could happen, since I am the one responsible for how it is run. 

I of course went on about how the surgery I’d had almost a year ago where my blood sugars had zoomed up to 22 mmol/l after what was supposed to be a 1 hour surgery became 5 hours.  No insulin had been in the drip (they no longer do this) … you can read that blog at this link if you’re interested. 

I found out she has a Type 1 diabetic brother (still on MDI) and that if he was on a pump she would NOT have him wearing it during surgery.  She would rather see him go high then low; since it can be more easily corrected then if he went low  (I can hear a few of you making some noises at her statement).  And as my DH pointed out to my endo that after the hysterectomy surgery last year, he was there advising them how much insulin to give to me to bring me down since I was semi-conscious at the time and was trying to tell the RN's the same thing.  So it wasn’t like I was in exact danger of going into DKA, though I could have gone into hypoglycemic mode if he’d not told them at the time to not give 10 units of rapid insulin … I would have crashed with that amount since I’m still sensitive to insulin after ½ a century of being diabetic. 

I’d never really looked at it her way before.  Of the what if’s ….

I then told her how just a month previous to the colonoscopy that an anesthesiologist (Dr. McDreamy aka Dr. Cook in reality) had actually allowed me to wear my pump (after I showed him how to shut it off if my CGM started to go alarm I was going low).  It was so nice waking up after that surgery with perfect blood sugars, and feeling like I could leap over tall buildings  (well – not quite exactly like Superman) 


Ohh, ohh, another virtual slap (this is started to sting abit)

Once again, she explained all that could have gone wrong, and I actually began to see where she was coming from.  She even said that if I had one of the CDE’s beside me, watching things, it still is dangerous, that they may make an error despite all the knowledge that they may have, they are not YOU! 

It really made me face reality with what could/can occur during even the simplest procedure, while you are out flat on your back.  In future, I will rethink my control freakiness to have the perfect blood sugar during and after a surgical procedure (I’m hoping to not have another one for many years … well … at least 5 more years until my next colonoscopy).

So I've now come to the conclusion that MDI will be my future way to go … and know that even if I do spike high in my blood sugars, that I’ll be okay. 

I'm no longer a Stupid Girl