When your eyesight is compromised

I’ve been abit quiet lately with both blogging and doing my bit in social media since coming back from the IDF conference in Vancouver.  The main reason, I was burnt from doing a lot of diabetes advocacy in the month of November and not being able to see very well since then due to having some sort of allergic reaction in Vancouver that scared the #@*! out of me since it’s always that “is it due to diabetes?”  So, sadly  this is now making it difficult for me to stare at any gadget with a screen, even with looking away every 20 minutes (this was recommended by my optometrist back in November – and is good advice for EVERYONE who works on a screen or any other type of device).  Even better, to remember to take that 20-20-20 break … you can download a free app to remind you to take eye  breaks called Workrave (sadly not available to Mac).

If any of you follow me on Instagram / Facebook / Twitter you would have seen some of my posts on how the skin around my eyes looked (they freaked out my Mum and Dad to no end).  Whether it was the new BLUE carpeting that was put down in the conference centre for the event that let off various chemicals (this is what one of the RN’s that was a volunteer like me had thought it could be) … the drier air … higher altitude in BC … who knows.  It got to the point where the skin around my eyes was so swollen that I thought I’d need a guide dog to allow me to see.  I was a very scared cat!

My only relief was the daily 2 km walk to the conference and back with the moist Vancouver air hitting my eyes, but things were going from bad to worse on a daily basis (I had the same thing happen in Las Vegas in March at another diabetic conference – so is it a combination of drier climate and being in a conference area that has carpeting ?).  I had one pharmacist telling me to use a cortisone cream around my eyes (carefully – as he advised – it’s not supposed to be placed near eyes) – which did not work at all but actually made it worse.    In the end, a few of the CDE’s that were part of the same volunteer team that I was with, suggested taking an antihistamine, and the pharmacy they directed me to managed to find the right type to use for what I was going through (non drowsy of course so I wouldn’t drift off to la-la-land during the 8-12 hour days that most of us were having at the conference).

Sadly, it’s never quite cleared up completely, so who knows what is causing it (dry air of winter? or natural gas heating which is a new thing to me being from a house that was heated by oil or electricity before?).  I’m just dealing with it as best as I can after going to a local walk in clinic where all they could say was it would get better .  I demanded at that point for a referral to an Allergist which sadly the GP said it may still not help (I see the Allergist at the end of March).  After that, who knows, maybe a dermatologist (there are only 2 in the town I live in) will be the next step to figure out what is causing the skin problems surrounding my eyes (I do have rosacea which can cause problems with your eyes … but as someone suggested it also could be eczema).

All I know, in composing this blog, even with typing with my eyes closed, my eyes are screaming, both inside and out with a feeling like a dry dessert  (and yes I use moisturizing eye drops a lot since the cornealabrasion episode last fall).  The only good thing though, with December’s annual diabetic eye check-up?  My old fart diabetic eyes are doing extremely well with having diabetes since 1967 with not extreme changes..

Eye drop time ... moisturize the parched skin area (good thing - I have no wrinkles with the skin so stretched ... I look 21 again) - take a break from the screen… until next time my readers!

My Reflections of the International Diabetes Federation Conference in Vancouver

Sock Monkey preparing to give a speech!

We made it to Vancouver!!!

I’ve been back for a week now since doing my volunteer stint at #wdc2015 in Vancouver where  I lucked in on being one of the 100 volunteers that help IDF run smoothly.  Now, when I  say “lucked in”, being a volunteer is an expensive endeavour for those of us who don’t live close by.  For myself, it was a 12 hour journey to get to Vancouver on a milk run (if you saw my posts in Instagram with my 4 hour layover in Edmonton and “date” with one of the Westjet employees … you will see I made the most of this long trip out west).  I lucked in for this trip of having a nephew who is a Captain at Westjet giving up one of his standby passes to allow a less expensive option of flying the friendly skies of Canada along with shacking up with two other T1D mates in a time share that one of them has that was under a 2 km walk each day to the conference centre in Vancouver. 

Hamming it up within the #bluecircle

Despite this time of the year, which is rain, rain, and more rain … I loved my time in Vancouver both during the conference and afterwards (will blog about that experience later … let’s just say … I’m no longer a virgin when it comes to staying in a youth hostel).  The temperatures weren’t cold though many of the non Canadian visitors to the conference thought otherwise (e.g. “Dubai is 30C today … this 11C is cold”).  Ha! Ha! Come to other parts of Canada my friend and you will not be complaining.  All I can say, if I had a well paying job (rents are not cheap in the city which is where I’d love to live), I’d move out there in a flash!  Fresh seafood, laid back people, 2^nd hand shops galore, funkiness, ability to walk in comfort, good public transport … need I say more?

This was my 2^nd time volunteering with CDA (Canadian Diabetes Association) for the IDF convention, the last time was in 2009 in Montreal where I lived at the time (you can read about it @Diabetes1.org where I also did a stint wearing a media badge for them … this time I didn’t).   I loved my experience last time, talking to doctors, researchers, companies involved in helping diabetics live life to the fullest.   This time though, IDF due to legalities of products either not being available in Canada, as well as my not being in the medical profession limited the company representatives the ability to converse with me, and some could not even giving me a brochure to help me pass on the info to others (e.g. my CDE's at Cornwall Community Hospital - sorry).  This was my main goal with attending the IDF conference!  So sadly this maybe my last time going (next one is in Abu Dhabi) – as I found it highly frustrating not to have open and honest conversations with people.

Henna Tattoo (I got two) - and insulin pens that have been blinged out in "jewels"!!!

The one good thing though despite not being able to obtain info on new insulins, etc. was the amount of people I met who had either never seen a T1D of my longevity, without complications or the devices I wore.  I educated a few of them on the Dexcom G4 CGMS, insulin pump (e.g. a few nurses were interested in watching me do an infusion change in the washroom one day when Ziggy, my insulin pump, ran out of his juice of life aka insulin).  I was invited to a few countries to give talks (me … on a stage … never … leave that to the ones that enjoy being in the lime light … I’m just happy doing what I do here from my laptop and meeting folks in small groups).  So that made up for not being able to collect more information that I did last time I attended and I'm hoping to play catch up with some of the information sessions that I couldn't attend due to schedule with volunteer duties that are available to attendees to view online.

What did sadden me the most, and what I was being asked to help out with if I came to their country to educate/speak …. EDUCATION (please note … as I told them … I am not a medical professional … just someone living with diabetes most of their life).  It is greatly lacking, along with resources, and costs for drugs, etc. that we all take for granted here in Canada / USA (50 test strips a year are covered in some countries for a T1D!!!).    One surgeon I spoke to from Bangladesh, who performs amputations told me of the amount of amputations he does, not just of toes, but of legs due to people not either knowing they are diabetic, or footwear (many go barefoot or wear shoes that allow objects to become embedded into their feet).  He wished they had better education in their hospitals or community centre that taught people about foot care and diabetes.  I heard similar stories from people I met both during and after the conference, e.g. I met a woman from Saudi Arabia on the day of Santa Claus’s parade in Vancouver (piss pouring rain) and she asked me for directions to it.  It turned out as we walked that she had attended the conference, we discussed diabetes and how I handled it, exchanged calling cards, and viola, another person dealing with the epidemic of Type 2 diabetes in their part of our big blue marble.

The best part though?  Meeting up with new people and some I only know online and never met IRL since joining the #DOC (diabetic online community) in order to learn how to use my pump back in 2008! That in turn lead to a job at Diabetes1.org along with getting more involved in advocacy (I didn’t really talk much about diabetes for my first 41 years with it … shame on me).    Cherise Shockley gives a really good hug and speaks from the heart.  Manny Hernandez … well my “wet pussy” statements floored both him and Tom Karlya aka Diabetic Dad (sorry – I told them I didn’t wear my ears walking to the conference centre due to getting … rain soaked!!).   Sadly, I think Kerri Sparling was worried another photo bomb would be taken of us … so she avoided any "ear contact" with me ;)   The main thing though, meeting up with other folks (some you see scattered in pictures here) who are advocating / educating about diabetes is the most important thing!!!

Here’s to finding a CURE!!!